Docs,
After reading Financial Toxicity and Cancer Therapy (A Primer for Radiation Oncologists), your paper, I want to thank you for addressing what most in your profession will not. The ridiculous cost of cancer is simply one chapter of the failure in American health care. I appreciate the opportunity to read how these thoughts have been formulated by some highly educated experts in their field. One of these experts is in the process of trying to cure my rectal cancer. The specificity of the treatment regimen is something I am poorly qualified to discuss. It is just outside my wheel house, obviously. I am in your hands and regardless of what I think about the economic, financial and political ramifications of how we administer health care in America I am truly appreciative of your services. I can also preface this by saying every single person involved in the treatment of my rectal cancer has been top flight in my personal opinion.
However, this piece written is about affordability of your services, or lack of. I got the feeling it was more scholastic in defining some of the issues. Instead of offering measurable steps in how to solve the underlying causes of Financial Toxicity (FT) foisted upon unhealthy, uninsured and low income Americans the piece merely exemplifies it. Overall, I believe it would be more compelling to exemplify the causes of (FT) in healthcare in America by comparing and contrasting it with the Swedish health care model and Adam Smith’s Wealth of Nations (1776). The Scandinavian health care models are similar, however, I lived in Sweden and most familiar with their system. The solution to (FT) in America is multi faceted but the blue print is already there. The Scandinavian health care systems have been running efficiently for decades. Scandinavians also consistently are anchored at the top of most surveys regarding the healthiest and happiest people in the world. America is the wealthiest country in the world and never near the top. China has almost four times our population. Healthcare is free in China to all Chinese citizens. China has been the fastest growing economy for the last couple decades with free health care for the world’s largest population and it is communist? It is much like my Swedish buddy told me on his first trip to America, “It really is the best place to live if you are healthy and wealthy. If you are not? It is not that cool.” I will return to the Swedish model later as part of the solution.
Smith’s work is the playbook and bedrock of capitalism in America and a great place to start. This book laid out, labor, wages, property rights, taxation, etc…Smith is famous for the Invisible Hand theory that can be best summarized by everyone acting in their own self interest and mutual interdependence. This increases the quality and drops the prices in almost all goods and services. College and the internet told me Smith’s concern was that economic inequality distorts our sympathies. Unfortunately, this alludes to admiration of lifestyles of the rich and famous and demonizes those most susceptible to (FT). This mentality, protocol and policies in place to enforce it are misguided at best. This American health care model serves to undermine both morality and happiness of those most in need of the services. Smith’s model is outdated to say the least. All the money and power have ended up at the top. The results; measured by the national health care metrics, happiness and economic freedom? This is a flop for those unhealthy and most susceptible to (FT). Oddly enough, about 100 years later Marx and Engels wrote the Communist Manifesto. They predicted capitalism was a phase. All the people with no cash/proletariat/labor didn’t have enough in common to agree on the good of the whole. Those on the bottom of the financial totem pole would rise up and demand change. This has also happened throughout history for various reasons. The rich people have been screwing over the poor people since money was created. A fool and their money are soon parted….no college degree needed.
The reality is the piece you have written reminded me much of the Minnesota Viking Super Bowl Committee talking about perpetuating the current strategy for success. By most metrics they are financially successful. Everyone at the table is a millionaire and the owner is a billionaire. I have also been a life long Vikings fan and watched these jokers fail in every way imaginable as a sports franchise. There is no seat for me at the table though. However, the stadium is full every Sunday, the profits are astronomical and the prices across the board are at nose bleed levels on everything for sale within the stadium and online. The key players salaries are tens of millions of dollars and the other 80% of the team deal with half of the rest of the money. The tax payers are on the hook for hundreds of millions of dollars for the stadium to start with before it was even built. Sure, it looks beautiful and I still watch the games. What is wrong with this scenario? How about the freakin’ results, fellas? Of course, one is entertainment and one is health care…..or are they?
The funny part of this analogy? When my Viking favorite is lying there on his back on the field and the highly qualified and compensated medical team run out and gathers around him. “Wow, Latrell, looks like that shit hurt. Imagine that, 6’5” 280lb. guy just piss pounded you.” As a medical professional, what is the obvious thing to say here if this were your kid? “Yo, son, ya gotta stop playing this game. The brain collides with the inside of the skull from inertia. The helmet is a gimmick if not the weapon. You will end up even dumber than you are now and without the fat paycheck here shortly. Do yourself a favor and take the money you got from the contract and go back to school or just put it in the bank and live well below your means for the next decade. Thank me later.” Nope, it is the opposite. Everyone just wants him back in the game; the fans, the teammates, the coach and himself. So we justify mending Latrell only to throw him back out into the exact same high risk environment that caused the injury in the first place. Subsequently, the medical professionals on the field go against all their training and perpetuate the problem by trying to resurrect the injured players only to run through the sequence again. Why? Simple, their own self interest.
If the medical professionals were actually effective at their jobs, and affective on the overall health of Americans in general, the number of patients would subside and the emphasis would change to mostly preventative healthcare and maintenance, yes? Nope, the cash is made in treating the symptoms, not preventing them. Today our neighborhoods, streets, schools and prisons are filled with obesity, cardio vascular disease, dementia, diabetes, mental health cases, addicts, alcoholics, criminals and degenerates. Voila, for profit health care. The rest is a traveling show of plausible deniability, deflection, legalese and justification. No other first world country has such terrible healthcare results within its population.
But where does this health care jerk off for the masses begin in America? There is an equal amount of culpability between the American Medical Association, politicians, universities and insurance companies to go around. Let’s look a little further into how each of these participants is equally to blame for the terrible results of American healthcare. The plausible deniability is woven deeply into each participant for the same reason, profits. Ask any of the those administering health care if their needs to be change and the vast majority will say there is….as long as their pay does not go down by the changes. All will see some failure in the process of facilitating the actual health care to patients. Unfortunately, the scrutiny on their own over inflated charges, value and failures draw little to no scrutiny. In short, the individual interest of the person providing the health care takes precedence to those needing it.
Clearly, there is also little concern by the AMA to mitigate the exact same behaviors that lead citizens to becoming patients. The simple function of this equation would mean less office visits and procedures performed. This means less money. There is no politician standing up for those who have nothing to donate compared to some of the deepest lobbying pockets in America. The citizens are bombarded with unhealthy junk food commercials, knuckle dragging stupid credit card commercials to pay for any experience to keep one entertained and then advertisements for gimmick supplements and pharmaceuticals to fix you when you are not getting the results out of the life you deserve. It seems pretty clear by following these advertisements Americans are being conditioned to believe they have the freedom to be as careless as they possibly can be with no consequences. However, when it does fail there are doctors there to fix it…..as long as you can pay.
Where is the American Medical Association, the association of our finest medical minds on Team USA, to stand up to this messaging? The message is quite simple, “Hey, can we stop exploiting our people into bad behavior that we know leads to long term consequences?” Crickets. One look at the AMA website currently and it is part scholastic, platitudes issued as public statements that are meant to deflect liability lawsuits and commingle marketing simultaneously…. instead of affect meaningful change. “The most important subject facing the AMA is medicare reimbursements?” All of this is under the guise of the patient deserves and needs the absolute best health care in the world. There is not a peep about the cost of said care. The name of the game is to never stop the cash flow. All businesses have this ambition. The majority of doctors in America have opted for there profits over professionalism. Masquerading as intellectuals, business professionals, educators and healthcare professionals in an echo chamber with each participant allowing their own individual self interest to supplant the interest of the greater good of the whole. Instead of market forces determining the best prices, best quality and most value, it is a rigged system. Those who are in most need of the services and those with highest probability of facing (FT) are the exact people suffering the consequences because…..they cant afford your services.
Americans are some of the unhealthiest and fattest people in the world. Why do we allow low income people utilizing SNAP benefits to purchase sugary drinks, high fat, high salt and ultra processed foods on Uncle Sam’s dime? The science is already in. We know that there is a direct correlation between intelligence, poverty and poor health outcomes. Millions of Americans are not smart enough to feed themselves healthy food. This is sad but true. This seems like an obvious place to see improvements in the health care statistics. Also seems like a damn good place to start taking action. Where is the American Medical Association leading the charge to stop this government financing of unhealthy food? Crickets, again. Why? It is quite easy to connect the dots and draw a direct line to future health consequences. These unhealthy folks are quite simply the next customers. Where are the senate committee hearings and investigations, exactly like tobacco? These dumb, fat and unhealthy folks make paying customers for the whole medical industry; general practitioners, big pharmaceutical companies, medical devices, specialists, continued care, supplements, etc… Once the unhealthy are flat broke they get medicaid, or turn 65 and get medicare. These patients themselves don’t care about price either because they are not paying for it. The plausible deniability? American freedom allows people to eat whatever they want and that means junk food too. “It’s too complicated”, ” It is political”, “ I am just a doctor.” No, it is simple. Make a stand this is bad for our people. Professionalism over profits. On the AMA website right now as I write this is “Why Medicare reform is our top priority.” The speaker goes on to say their reimbursements have declined 29% since 2001. This denies patients access to high quality health care. Really? The other way of saying this is, “We prefer to work with the wealthier folks who have private insurance or cash, not have some government entity tell us what we can charge.”
Where is the AMA to protest the dumb pharmaceutical television commercials? These have gotten beyond stupid with, dancing and twirling fat people singing about diabetes drugs or some severely depressed person laughing simply by taking a pill. It seems there are diseases literally invented to have a pharmaceutical to combat it. Each commercial always has the token, “Ask your doctor now.” What are the costs of these commercials? This is inherently a substantial cost of the medicine itself. The people that see these learn nothing about the actual drug other than a laundry list of potential side effects and some fine print on the bottom of the screen. The entire process is controlled by sales reps with samples who meet with doctors and pharmacists. The reps already have all of the doctors prescribing data on proprietary software. This tells how much of they are selling, what brands, pricing and historical prescribing information. What could possibly go wrong?
This behavior is not tolerated in the vast majority of first world countries either. Look no further than the Sackler family behind Purdue Pharma OxyContin and the opioid crisis. A pathetic multi billion dollar scandal that involved many of the C suite executives being indicted on fraud. The massive donations to schools to verify the quack science for the family name on the buildings, now removed, was repulsive. Massive settlements to states over this scandal have already been paid out. The Sacklers are not behind bars and their massive ill gotten fortune is protected by lawyers and laws. Why? They incorporated to limit their own personal liability while acting in the capacity of the company. The entire time they were siphoning off the ill gotten profits and in the end they accept no responsibility and negotiate a payout. Obviously, the OyxContin marketing had no purpose other than to promote sales. Was Purdue Pharma the only one abusing this process? Nope. National opioid settlements have been reached with several companies/defendants; Janssen, Cardinal, McKesson, AmerisourceBergen, Teva, Allergan, CVS, Walgreens, Walmart, and Kroger Co. All of them were operating on their own self interest and admit no guilt as part of their settlements.
Americas universities are also in large part to blame for the (FT) across the board in health care. How much is the final tab for medical school? What is the premium on the malpractice coverage? I ask this because these are significant costs in the care provided and I did not see it mentioned in the piece I read. I notice there are no doctors advertising that their prices are also cheaper when their loans are paid off. The truth is the university tuition bubble needs to burst and healthcare is the best example of why. The reality is equally talented doctors in Sweden are trained for next to no charge and there is no malpractice. Their people are healthier because they are more educated and their culture does not promote excess wealth as a virtue. Sports are not part of academics at any grade level in their education model. Sports are viewed as entertainment and not a valid career choice. Yet, they still have guys playing professionally in the NHL and Premier League Soccer. How many Americans have gone too far down the road of believing they, or their kid, were going to be the next professional athlete? How many teachers looked the other way on failing students simply because they were an athlete? The reality is colleges are not non profit organizations as they claim. They are billion dollar organizations parading as non profit educators to the masses. Sure, the science folks get a good education on campus but the liberal arts students get soaked with worthless degrees that no employers are looking for. Half the football and basketball team scholarships are dropped as players realize they will not be going to the pros and the African American studies degree is wanted by no employer on internet job postings. These are the exact next generation of (FT) patients. They will be trying to determine if they pay the student loan or take your over priced medicine in a few years. Meanwhile back on campus, the construction never stops with every building named after the next billionaire philanthropic tax gimmick emblazoned across the front. The foundations have swollen to over a billion dollars in many cases and yet tuition never seems to go down. There is zero getting out of the student loan either. Yet, there is absolutely no accountability from the universities for charging millions of students exorbitant amounts of money for knowledge that cant be parlayed into a self sustaining career. This is called eating your young and creating minions.
The “No Fault Compensation for Medical injuries” article in the July 2001 Journal of American Medicine compared the healthcare systems of New Zealand and Sweden for comparative purposes. It concludes that there is no imaginable way this type of health care could be implemented in America without expanding a massive social safety net. This is correct. But to go on and state that patient safety has suffered severely because of linking compensation to the accountability of unsafe health care providers is a bit rich. Considering Sweden has one of the best health care systems in the world. New Zealand is no health care slouch either. This is more American bravado. The correct conclusion would be, “Our current system is a failure that over compensates doctors involved in American health care. There are many variables for this but we should lobby for drastic changes because a significant portion of our population can’t afford our services and are in terrible physical, psychological and financial shape.”
It is impossible not to mention the insurance industries stunts in this fiasco. The term adverse selection should be repeated throughout your piece but I didn’t notice it. This is the insurance industries term for people that are too sick, old or unhealthy to be offered coverage. Actuarial science creates the sliding scale of the cost per unit of insurance based on a multitude of health factors but each of them adds to the per unit cost. The people that have pre existing conditions are eliminated and thus destined for (FT) or pay in cash. This process is designed to charge the most for the people that have the highest probability of actually filing a claim. Add on top of this the publicly available information on insider trading on health insurance stocks and this seems unethical. As of the writing of this piece the Those at the top of these organizations were just smashing it in 2023.
-United Health Care CEO Andrew Witty $24m,
-CVS CEO Karen Lynch $21m
--Molina Healthcare CEO Joseph Zubresky $21.5m
-Cigna CEO David Cordani $20.9m
-Centene CEO Sarah London $18.6m
- Humana CEO Bruce Broussard $16.3m
How much health care could have been provided to those suffering (FT) with the over $120 million in health insurance CEO compensation alone? The insurance companies are directly responsible for their part because they are foisted upon the employers of America who are burdened with choosing one of these companies to offer coverage to their employees. Not only are most employers not experts at insurance they are also required every year to shop the coverage. The reason for this is any claims that have been filed can be calculated in to next year’s premium. The other employees absorb the increase in premium or quit and seek a job with better insurance. No one likes this; employers, employees or health care administration staff dealing with all the various insurance companies. This process directly leads to discrimination in hiring without a word being said. The unhealthy employee increases the cost on the otherwise healthy employees. I personally am going through that right now. Do I tell the prospective employer I am taking radiation every day and need the morning off? Then it will be surgery so I will need another week off? Nope, the resume goes right in the trash with a smile and a subsequent email that says we are moving forward with other candidates.
Still more pathetic is the fact that medical debt is one of the primary reasons people file bankruptcy in America. Not only do the doctors charge rock star prices on everything, they turn the debt over to collectors to pursue you. Any debt over $500 can also affect one’s credit score. With background checks and credit checks involved in employment offers this immediately puts anyone in (FT) behind the 8 ball. This is the dirty truth about American healthcare long after the person is out of the hospital or completed their care. The cold hard truth here is wea re going to charge the most expensive prices in the world for the care we provide and if you use it we will pursue you all the way to bankruptcy to ensure we get paid. Shameful. Easy to justify it at the top. The docs earned their way. Good for them. I have no qualms with doctors being the highest paid professionals in America…..provided the results are there to back it up just like any other business model. “Sorry, pal. No guarantees other than we ask for proof of insurance before we treat you. No refunds either.”
The most difficult pill to swallow in this entire piece is the political corruption. There is no voice for the millions of poor, unhealthy, low IQ and worse. Their presence is the byproduct of a system that does not yield the best results for the masses. Their growing numbers also indicate the system in place heretofore is a failure. Politicians need money and the poor, sick and dumb have no cash. Most of them do not vote either as they are simply trying to survive in a system that has failed them. Politicians can speak all they want to the problems we face but until there is meaningful campaign finance reform their self interest is re election not healthy Americans.
Let’s bring Sweden back in to the picture again. In America there is limited free education, scholastic or industrial, that can lead to certification. In Sweden there is a system called Akassa. We do not have this. It is lifetime job training. As long as you can pass the exams you can be trained for anything pretty much. Those in-between jobs and training for their next via the Akassa system also receive a job training stipend. In short, their society understands health care and education come in myriad forms throughout life. A person’s dignity is important. It is a commitment to integrating all into society as productive members. What is more important for societies’ prosperity than to offer its citizens free health care and education? In addition to these benefits there are several months of paid maternity leave that can be split by both parents. The nurturing aspects of early human development are crucial in emotional and social development. The guaranteed pensions and state sponsored nursing homes are integral in keeping what wealth that has been earned in the family and hands of private citizens.
America’s poor and dumb’s (FT) will spill over into the greater future economy at large even more so than now. The current solution? It seems the AMA motto is “Take as much money off the table as possible without getting sued. You deserve it. Shit on socialized medicine at every turn or our personal pay checks will be headed south. Promise no results from our expensive treatment costs. Prices never go down and have zero interaction with the patients outside of the care facility. All issues go to HR and the legal department. Deflect all blame on costs towards the cost of education, insurance and business expenses. NEVER TELL THE PATIENT HOW MUCH YOU EARN OR YOUR PERSONAL BENEFITS!” Ever wonder why? Yeah, everyone would know they are getting screwed and want to pay less. The medical personnel working at the state universities have their salaries published so the average amount of homework can see we have some hypocrisy here. On the flip side, the poor and dumb? These individuals have to get down to bankruptcy level to go on medicaid or wait until they turn 65 to go on medicare. The nursing homes are mostly not paid for by the government and the Medicare and Medicaid systems currently are rigged to limit costs and are not in the best interest of the population at large. Quite simply, look at the overall results of the general health of our people. When is it acceptable to step up as an MD, or national association of doctors, and demand these gimmicks stop? Crickets. Why? Again, because those same doctors’ invisible hand encourages them to continue to charge the nosebleed level prices and enjoy a life of luxury. Don’t hate the player, hate the game. The default plausible deniability is that the system is just too complex to fix.
The Solution
The answer is very simple; social democracy, not socialism nor communism. This ridiculous line continually drawn and pumped by right wing partisans and the ignorant is constantly first brought up in any conversation about sweeping changes to our health care system. Social democracies are just like America except they have social safety nets. They vote in longstanding democracies, they have free markets, privacy laws, millionaires and billionaires as well as insurance, courts, hospitals and medical schools. They have higher taxes too. Still doctors in Sweden take home approximately $8,000 to $9,000 a month. They have no student loans to deal with after graduation. The malpractice insurance is taken care of by the state’s Patient Compensation Insurance. This is administered at a fraction of the cost of the overall healthcare compared to American malpractice. The education is directly tied to job training. In America, the universities have exempted themselves for any accountability in providing education no employer is looking for. Primarily, the college of liberal arts has mostly been supplanted by Google and Wikipedia. There is no one at the registrars office trying to steer tuition paying students away towards industrial trades. The student athlete majors and curriculum have long been the subject of ridicule and folly. Why? The universities’ invisible hand cares more about making money in the short term than the long term affects of putting Latrell through school with a degree no employers are looking for. Then to put him out on the field as an incentivized student in what everyone clearly knows is a very dangerous sport? It is for the money.
If you were to ask all the families in America, the world’s wealthiest country, “Would you accept your personal taxes going up 15% and 30% on everyone earning over $300,000 if you received the following benefits;
-almost no cost lifetime health care
-lifetime almost free education
- very low cost child care
- almost no cost nursing homes
- months of paid parental leave
- guaranteed pensions
- unemployment insurance
- restricted firearm ownership
- better public transportation
- better quality food, less junk food consumption
- elected officials in legitimate elections
- legitimate courts and judicial process
- government regulation the majority feel is effective
- top scoring health and happiness scores in most all international surveys
- lifetime job training
- entrepreneurial and egalitarian spirit in heart and law
- strict respect and regulation for the environment and agriculture?”
The vast majority would say yes. Specially, if they got to visit there first and see how it played out in the long run. Who would say no? Obviously, all the “professionals” in America making north of $300,000. This would be a titanic shift in America that is unimaginable without a collapse of capitalism itself.
Oddly enough, about 100 years after Adam Smith’s Wealth of Nations Karl Marx wrote in the Kommunist Manifesto that capitalism was a phase that ultimately will culminate into socialism., primarily because the population won’t be able to agree on anything. It truly is greed that is the invisible hand. Adam Smith was writing before there was a steam train on the ground and probably would make some heavy redactions to the work if he were alive today. Karl Marx is probably smiling in a grave but not 100% accurate either. There will always be self interest, but other than people’s family and their health it is their money that matters most….not the other guy. Kind of like the owners of the Minnesota Vikings; this year looks rough even before the season and the committee’s recommendations for winning the Super Bowl. This year is purple beer on game days and more platitudes about racism visible on television. Go to the same well and the water tastes the same.
When I look back 100 years ago on what they did for rectal cancer it was zero other than alleviate symptoms the best they could with what they had available. What will they think 100 years from now about how we practiced medicine today? I suspect they wont take the AMA’s current priority of higher medicare reimbursements over socializing medicine was best for the people. I am lucky. I am flying for free as a service connected veteran. I get the exact same treatment all the people paying out the nose are. The doctors in Sweden are using the exact same treatments we are in America. They have the exact same requirements for education too. The difference is their people are smarter as a whole about the needs of a society and the importance of equal access. Not every kid in Sweden ends up a doctor and not everyone is healthy. But what they are committed to is not having health care put anyone in (FT) and that means higher taxes on the rich and not tax gimmicks disguised as philanthropy for the ultra wealthy. In America, this will not happen as too many people have their grubby invisible hands in the pie. However, like the late Winston Churchill said, “You can always count on the Americans to do the right thing- after they’ve tried everything else.”